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Webinar Recording
 
11-01-2023

How Can Patients and Healthcare Professionals Communicate and Support Each Other More Effectively?


https://expectinghealth.org/news/2023-newborn-screening-bootcamp

Co-hosted by Expecting Health and the EveryLife Foundation for Rare Diseases, Newborn Screening Bootcamp provides attendees with the opportunity to learn about and discuss developments in newborn screening with experts and patient advocates currently navigating the newborn screening process – as we also work to facilitate engagement across our ecosystems. Panels will focus on ways advocates interact with the newborn screening system, highlighting the work of federal agencies as well as opportunities for advocates to sit on various federal and state newborn screening-related committees.

The 2023 Newborn Screening Bootcamp will take place Wednesday, November 1st at the Bethesda North Marriott Hotel & Conference Center in Rockville, Maryland.  In-person attendees will enjoy a networking reception directly after the Bootcamp, and a livestream option will be available for those unable to attend in person.

24 October 2023
Updated: 11/13/23
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